Esophageal Atresia: Our Story
My daughter was born with a rare disease called Long-gap Esophageal Atresia (LGEA). In other words, she had a disruption in her esophagus and couldn’t swallow. This was between 2.5 and 3 cm long. We spent more than three months in the hospital. Xara had three surgeries and one additional procedure. Two and a half months after she was born, she began to swallow.
In the posts within this page, I give my best to explain all the crucial moments during my pregnancy and after the delivery, as well as our daily challenges and ways we try in order to provide our daughter with a healthy life. I want to inspire, support, and encourage parents who encounter the same problem (above all moms to be).